Our Charity has greatly helped the lives of AVM sufferers and their families, by offering information and advice on who to turn to for help.
The money raised is used to fund research. We help maximise results by not just donating, but by specifically employing researchers and PhD Students and paying for specific equipment that is vital to their work. Our amazing researchers work in conjunction with Great Ormond Street Hospital, University College of London, Royal Free Hospital and the Francis Crick Institute. Their aim is to breakdown the boundaries using cutting edge research and the provide the help that is needed to understand the genetic structure of AVMs and search for definitive treatments and one day the cure we long to find.
We are very proud of this partnership. In-fact the researchers funded by this charity discovered the first genetic mutations that are responsible for AVMs!
This is why we must continue to raise awareness and funding, so that we can continue to employ researchers in an attempt to fund further breakthrough’s with this disease.
Our fundamental objective is to inform the general public about AVMs, and let them be inspired and moved by the stories of AVM sufferers. With readily available information we hope our charity website will help those living with an AVMs.
George Christou
Chairman / Director of The Butterfly AVM Charity Limited
OUR AIMS
Awareness
We wish to raise awareness about AVMs
Support
We want to support AVM sufferers and their families
Update
We will inform AVM sufferers about new treatments
Treatment
We must establish a comprehensive list of treatment centres, specialist interventional radiologists, surgeons & doctors
Fundraising
We need to raise the funds for specific research into peripheral, brain & extremity AVMs
Research
We hope to have a greater understanding of the disease to enhance the lives of sufferers
The Future
We aim to improve treatments and find that much sought after cure
WHY YOUR CONTRIBUTION IS SO IMPORTANT?:
The Butterfly AVM Charity is the first specific AVM charity in the UK. Our Charity has greatly helped the lives of AVM sufferers and their families who previously to our formation had no one to turn to for advice and help.
All the funds have been used to fund research and we maximise results by not just donating but employing researchers in conjunction with Great Ormond Street Hospital, University College of London and The Francis Crick institute.
We are very proud of this partnership, in-fact our researchers discovered the first genetic mutations that are responsible for AVMs!
We will continue our funding and with further breakthrough’s we hope that greater understanding can result in more definitive treatments to enhance the lives of AVM sufferers.
Any contribution you can give would be amazing! Because together we can make a change.
George Christou, Director of The Butterfly AVM Charity Ltd