The Butterfly AVM Charity

Together we can make a change.

RESEARCH. AWARENESS. SUPPORT.

The Butterfly AVM Charity is the first specific AVM charity in the UK.

Together we can make a change, build awareness, support and raise funds for much needed research into the understanding of facial, extremity and brain AVMs.

Due to the rarity of AVMs in the population and lack of funding, the advancements required to enable doctors and surgeons to increase the success rate of treatments has been slow. Our Charity was created with a dream to redress this by providing directional funding to Research institutions in the hope that definitive treatments are discovered.

We would like to thank Dr Veronica Kinsler, Dr Maanasa Polubothu, Mr David Dunaway, Great Ormond Street, The Royal Free, The UCL Hospitals and The Francis Crick Institute for their constant support, medical expertise and knowledge, which is second to none and to all our Butterfly AVM Taskforce and volunteers who unselfishly give up their valuable time to help us on journey.

What is an AVM?

An arteriovenous malformation (AVM) is a tangle of abnormal blood vessels in which arteries connect directly to veins, bypassing the normal network of tiny blood vessels called capillaries. AVMs can occur in different parts of the body and can affect people in very different ways. Some cause no symptoms, while others can cause pain, swelling, bleeding or other serious complications, depending on their location, size and the blood vessels involved.

ABOUT AVMS